ABSTRACT
Iran has a population of ~83 million people with marked cultural and economic differences. Due to culture and consanguineous marriage, inherited neuromuscular diseases (NMDs) are more common than some other countries. Iranian registry of SMA patients has been started with the onset of the outbreak of Covid-19. Due to the multi-organ involvement in COVID-19 infection and higher risks of mortality and morbidity for the neuromuscular disorders, ofering rehabilitation and management of these patients especially SMA can be highly effective in the complications of the disease as well as the number of hospitalizations. With considering this situation, new platform for registry and management of SMA has been developed. In this platform, Tele rehabilitation as well as the creation of parent organizations, are contributing to the increased quality of the management of SMA patients. Over the past months, this care has provided new experiments. This article describes the outcome of this joint efort and shares the experience gained in this registry.